Delaney is fresh off her first full week of school in the past 5 weeks! After missing four weeks of school and having cold-like symptoms for over three months, her doctor did some additional scans on her. He showed us the scan of her nasal cavity and being the doctor that I am NOT, I identified the problem right away, “Aha! That little black dot right there is probably the problem!” Delaney’s doctor was kind enough to confirm my errant conclusion, “Yep, that’s it, but it isn’t because what you think.” Apparently the whole scan should have been black. Delaney’s scan showed one little black dot on one side, and no black at all on the other. So what it meant was that her nasal cavity was 100% blocked on one side and about 95% on the other. So besides this preventing her from being able to fight anything, there was a slight fear that it could go to the brain because of its proximity to the nasal cavity. Long story short, Delaney is now getting IVIG (basically blood or more specifically a plasma product) transfusions once a month. As much as it isn’t fun for her, it did help her get well enough to go back to school!
On a different note, a little less than a week ago I signed up to do St. Baldrick’s again. If you aren’t familiar with it, St. Baldrick’s is a fantastic charity that directly benefits childhood cancer. They have raised millions and millions of dollars and given it back to the medical community in grants to research the cure and treatments of childhood cancers. Participants shave their heads to help raise awareness and money for St. Baldrick’s. So as of tomorrow, I’ll be sporting a buzz again… but that isn’t the exciting part.
A couple of days after I signed up, a very nice guy that I work with (yet barely even know), said that he would also join Team Delaney: “Cancer Can Kiss my Stache!” A couple of days after that, a guy that I have met once said that he would also join moving us up to 3 baldies. My sister was then kind enough to sign up as a donor and a volunteer, but too much of a sissy to shave her head. However, my wife got a call the other day from Luca’s mom, Molly. If you don’t remember Luka, she was diagnosed with leukemia only a few days after Delaney (you can read the first post from when we met Luca by clicking here – and I’ll apologize for my first impression of Delaney’s doctor who turned out to be wonderful — I feel like such an idiot when I re-read that part) . We learned the ropes of Children’s Hospital together while we learned about the terrible disease our daughters were just diagnosed with. Anyway, Molly called because she saw our post on Facebook that I was doing St. Baldrick’s again, and said that her husband Pete was going to come join us!!! So I have officially changed our St. Baldrick’s team name to Team Delaney AND Luca: “Cancer can Kiss my Stache!”
That brings us to 4 Baldies tomorrow and more importantly over $1100 raised for St. Baldrick’s in their fight to make sure that no parents ever need to hear, “We’re sorry to tell you this, but your child has cancer.”
Thank you so much to all the people that have already donated to St. Baldrick’s. If you would like to join them, you can do so by using this link: http://www.stbaldricks.org/teams/CancerCanKissMyStache