My mother-in-law informed me I had everyone in a “tither” which wasn’t my intention, but I figured I better shoot a quick update. We don’t know what is going on yet as they took her labs and she is getting X-rays right now, BUT she is in good spirits and even let out a “Weeeeee!!!!” As they wheeled her off to X-ray.
We just got the update that we will be spending the night here so they can observe her. 😦
Quick funny update to whoever prayed for God to send his messengers. My Pastor just showed up at the ER. He just happened to be next door. 🙂
If this is “the new normal” we are supposed to get used to, I can already tell you that I don’t like it!
Things have been pretty uneventful as we prepare for Day 29… until about 25 minutes ago. Stacey just called me at work and I could immediately tell she was in tears. All I could really make out was, “something is wrong with Delaney!” Long story short, I am back at the ER waiting for them to arrive via ambulance. We’ll update when we can, but in the meanwhile your prayers are appreciated!
I’m not sure if all moms have the knack of honesty that my own mother had or if she was just some sort of savant. I would come home from college or some other time being away, give my mom a hug, only to be greeted with, “Boy, you got fat!” I would chuckle and say something along the lines of, “Thanks mom, I love you too!” To which she would reply, “No seriously, you can really see it in your face. Your cheeks are huge!” I guess it wasn’t just my own mother, because I remember an ex-girlfriend’s mother asking me about a week after I had my wisdom teeth pulled, “Oh my gosh Tom, when will all that swelling go down???” What swelling? Any swelling was gone at least three days earlier. I figured it was the equivalent of asking a woman what her due date is, only to be informed (usually with a swift kick in the nuts) that she isn’t even pregnant.
I guess it is kind of funny when it is me, but not so much when it is Delaney. It has only three weeks of taking the steroids, and she has already gained over 25% of her body weight. You can have fun computing your own numbers, but for me that would equate to a gain of over 50 pounds in three weeks! The good news is that she hopefully only has to take the steroids for one more week.
One of her best friends saw her last weekend and asked, “What’s wrong with Delaney?”. We are by no means upset with comments like that especially considering they are just kids, but it is just sad. However, nothing broke our hearts like two days ago. She was basically writhing in pain, and for the first time ever said, “it’s not fair Mommy!” Stacey tried to hold back her own tears, gave Delaney a big hug, and just said, “You’re right baby, it’s not fair!”
Today’s chemo session is a little different only because we have transitioned over to the local doctor. I’m not sure if I already explained the deciding factor, but basically the big thing was that this doctor is already a specialist in cancer and has been for years (as opposed to the also very qualified doctor at Children’s, that was a doctor already, but becoming a specialist in cancer). It also a smaller facility so she will be treated by the same people every time we go so they will get the pleasure of getting to know Delaney better as well. The big logistical change for us is that it adds one day to our routine, as she now needs to go get her labs drawn again the day before chemo. When we have our really big days (ie. next week’s day 29 treatment) we will be heading back to Children’s. Good times… Ahhh to go back to the times when my biggest worry was wondering what kind of insult my mommy was going to lay on me!
Here is a pic of Delaney during today’s treatment (notice the best nurse in the world, Delaney’s Mommy, assisting):
For those of you looking for an excuse to cut loose (or come visit Colorado), you just got it! Get your sitters now because this is an adult only event and is featuring the best band since those guys from Dublin arrived on the scene! Here is the 411:
SATURDAY APRIL 27
THE MIRAGE SPORTS BAR (which is EXACTLY like Red Rocks, but slightly cooler)
8340 COALMINE DRIVE
LITTLETON, CO 80123
STARTING AT 7:00PM
NO COVER CHARGE BUT THE SUGGESTED DONATION IS $5.00
FEATURING THE BAND
SPECIAL GUEST JAKE SCHROEDER FROM OPIE GONE BAD
AV’S SIGNED JERSEY BY THE ENTIRE TEAM
BRONCOS AND ROCKIES MEMORABILIA
RESTAURANT GIFT CARDS
If I don’t see you there, you’ll have to answer to this little hooligan:
I have to say I am not going to be nearly as witty as my dear husband, but I am feeling robbed of the cathartic process of writing about this crazy time in our lives. I am Delaney’s mother, the Oncology nurse, who a dear friend of mine said, “has been training her whole life for this.” I don’t know if this is what I was planning on, but God has a plan and I guess this is it!
When Delaney was diagnosed I had one of those moments…the ones you envision all the time happen to you. All of you parents out there know what I’m talking about. Feel free to fill in the blank with your own personal response. I would imagine if one of my kids breaks their arm I would ______. If my child is diagnosed with a horrible disease I will _______. I definitely cried, fell to my knees, sobbed hugging Tom, and had a million different permeations of what could go wrong running through my head. Of course being the oncology nurse I am…none of them were good.
This started all of the “firsts”…the first time she had her blood drawn at Children’s Hospital, the first time she slept in a hospital bed, the first time she had an IV running, the first time she vomited and didn’t understand why, the first time she had surgery, her first dose of chemotherapy, the first time she was put under for a bone marrow asperation….all things I never dreamed we would experience. I know I have many more firsts that I don’t want to experience, but now have to.
I ask Delaney often what she thinks about what si going on with her and she responds “I don’t know”. She is just rolling with the punches, knowing that she will be alright in the end. I think I need to have some of that faith. My mother sends me the Daily Word with subject matter that she thinks will inspire me and today was very appropriate. It spoke about “Faith beginning with the belief that Life will bring the best for me”, just as Delaney does. Even in these tough times I need to have some FAITH that everything is going to be best for me. The verse attached to the devotion is…. Then Jesus answered her, “Woman, great is your faith! Let it be done for you as you wish.” And her daughter was healed instantly.—Matthew 15:28. WOW! What a shot to the gut. Just have faith Stacey.
Todays visit to the doctor was a good one. Her labs are stable, her MRD (Minimum Residual Disease) from day 8 was almost non-existent, and her side effects are minimal from the treatment. All blessings! She will be getting more chemo on Friday, and our big moment of truth (bone marrow, LP, and final day of induction) is on March 29th. That day will determine her exact level of risk and determine prognosis as well as the remainder of her treatment. She is such a trooper and an inspiration to me to be faithful and to know that there is a plan that has been layed out for us and we are along for this amazing ride with her.
Maybe I should apologize for the double post this week, but the way I see it, if you follow all of her bad (non) adventures like the chemo, bone marrow and all that other crud, you should be okay with an extra dose of Delaney goodness to end the weekend.
I got an instant message from a friend on Facebook tonight to inform me that the middle school where she teaches is starting their “Pennies for Patients” fundraiser tomorrow. If you aren’t familiar with Pennies for Patients, it is a program where students bring in spare pennies, nickels, dimes, and quarters to benefit The Leukemia & Lymphoma Society. Anyway, my friend was letting me know that her class is going to be generously participating in honor of Delaney (Excuse me while I give A quick shout out to Mrs. Flores class at Fulton Middle School in Fountain Valley, CA. You all have a very cute six year old mustached girl in Colorado cheering for you!).
Anyway, I was sharing this instant message with my wife, and she reminded me of something that I thought was worth sharing with all of you. Right before her own leukemia diagnosis, Delaney’s class participated in Pennies for Patients. Delaney came home from school on the very first day that it was announced and emptied her piggy bank (and her old man’s poker jar) to give it all to Pennies for Patients because she desperately wanted to help those sick kids. That’s just how our little Laney Bug rolls!