I may as well start at the beginning

     Hello and thanks for dropping by.  Some of you know a little already and some of you already know a lot.  Well scratch that, we don’t even know a lot yet but anyway I figure if I start at the beginning, we can all be at the same page.  My name is Tom, my wife is Stacey, and our daughter is Delaney.  Delaney has 3 sisters and is quite possibly THE sweetest person in the entire universe.  And according to people a lot smarter than me, Delaney also has leukemia.

      Last Thursday Delaney mentioned that her ear was hurting.  I figured that it was probably an ear infection so I better make her an appointment to see the doctor.  However, Delaney being the avid reader that she is, did not want to miss her special day of kindergarten where she got to read to the class so I held off on making the appointment that morning.  By that afternoon, she was in tears because her ear hurt so bad so I made her an appointment for the next morning.  She took some medicine for the pain and eventually drifted off to sleep. 

       At about 9:30, she woke up crying and my wife went into console her.  She carried her into our bedroom and said, “look at her face.”  Extending to her cheeks about an inch from the bottom of her ear was really swollen.  Long story short (okay shorter anyway), Stacey called the advice line and was told that she should take our daughter into the Emergency Room right away so she did.

       So even though my wife just worked a 12 hour shift at her own nursing job, and that she was going to get things ready for another daughter’s birthday the following day, she put on her Mom cape and headed to the E.R. Delaney, really just wanted for cuddle with her Mommy and Daddy and for the pain to go away, but she did not want to go to doctor’s office at that time of night.  “Come on” my wife told her, “it’ll be an adventure.”

     At the ER, they took some labs, looked at the swelling on her face which they thought was an infected parietal gland and then analyzed the results of the lab-work they just took.  Whatever they saw sufficiently spooked them to the point where they said, “Uhhh… we need  her moved to a different ER!”  They notified my wife that Delaney had to be transported via ambulance to Children’s Hospital in Aurora, CO.  Delaney said, “Ambulance???”  Stacey said, “It’ll be an adventure.”  Her adventure ended the next morning after she threw up some sort of disgusting medicine.   The doctors at Children’s said that it was probably an infected lymph node, prescribed some antibiotics, and sent us on our merry way. 

      What will sure to be a recurring theme here, and also happens to be a real blessing, is that my wife is a darn good nurse.  She actually was an oncology (cancer) nurse for over ten years before moving on to hospice.  She knows her stuff.  So when the doctor said we were free to go, Stacey started politely pressing about the “no restriction” part of the release (Delaney was busy doing a silly dance while singing, “Free at Last, free at last, thank God Almighty, I’m free at last.”).  Apparently, Stacey knew that at her place, a patient with that low of a white blood cell count would have some restrictions. ” But”, the doctor pointed out while politely semi-brushing her off, “you work with old folks who are already sick, and Delaney is young and healthy.” 

    My wife being the natural Florence Nightingale she is, imposed her own restrictions.  I took Delaney’s sisters to the Wildlife Museum and then on a real treasure hunt (Geo-caching– go on… call me a nerd and get it over with).  Delaney did not participate in the day’s fun so she could take it easy.   On Sunday Delaney was feeling so good she kicked my butt all the way through an Insanity workout, “Come on Dad, lift your knees higher, Dig Deeper!!!”  She didn’t only pull drill sergeant rank on me, she did the entire workout with me.  I point that out to because to illustrate the energy levels she had and still has as of right now.  She doesn’t feel sick… she just wants to go home and get back to school.

      Monday (yesterday) was a day just chalk full of adventures, including some that we’ll never forget.  Stacey took Delaney to what we thought was a routine follow-up appointment in the morning.   She was then notified that the first doctor from Friday night called over to say, “hey, get this kid’s blood drawn right away because we are hoping what we think we saw, was a mistake.”  So they took more blood from Delaney and then Stacey was able to take her home while we waited to hear something.   The first something was a call stating we needed to get Delaney to an Ear, Nose, and Throat doctor to check out her lymph node/ parietal gland.  So we trekked across town to be told by a very nice E.N.T. doc, “I really don’t know what this swelling is, but it doesn’t really matter because it isn’t even related to the irregular lab, and that may be your real problem.”

        A few hours later we got the call that immediately put our priorities in proper perspective: “You need to call on any and all support systems you have because we believe Delaney probably has leukemia and you need to get her back to the ER right away where she will be admitted.”  You could have taken a large hammer to our skulls and it probably would have been less of a blow to us at that point.  Our 12 year old saw us and immediately knew something was wrong.  We had her pack a bag, quickly packed our own bags, and headed back to Children’s Hospital.  Delaney knew something was up and after already having been seen by two different doctors that day, did NOT want to go on one more adventure.  

At this point I am just going to admit to barely being able to keep my eyes open.  I am sure there are typos, misspelled words, better designs, etc., that I can improve on at some point when I am more awake. I’ll update this to keep everyone posted.  IF YOU WANT TO RECEIVE THESE UPDATES: There should be some sort of area that allows you to “follow” by entering your email address in that area.  If you choose to do that, when there is an update posted, it will be emailed to you right away.    THANK YOU FOR YOUR PRAYERS FOR DELANEY!!!!!Image

 

      

 

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45 thoughts on “I may as well start at the beginning

  1. Tommy and Stacey, thank you for including me in you’re blight on Delany. My constant prayers for you and you’re family. Love lorraine

  2. Pablo and Sherry Smith are friends of ours and Sherry has asked us to pray for you all. We are absolutely praying for Delaney, your whole family and her doctors. I’ve also added you all to the prayer list at Prairie Grove Christian Church in Arkansas. We’ll continue to follow your journey and be prayer WARRIORS for you all!

  3. Tom and Stacey, we as well will be praying for you and your family. As we are local, please don’t hesitate to ask for anything. We’ll change our Elway’s plans to Red Robin when both families can go together.
    The Sommers Family

  4. Can I just tell you how amazing you guys are! You both have an incredible out look on life and these post of course are no exception! What a blessing to have Delaney be apart of your wildly fun and outgoing family! May the Lord bless and keep you as you travel on this unexpected adventure. Big hugs and prayers coming from Texas! We love you!!!!

  5. Hello Tom, it’s Meghann from Pinnacle, your team mate from volley ball 😉 Delaney sounds very brave and strong, my little girl is Delaney’s age and I know that there is nothing a child that age hates more then having to stay home from school. I prey for her swift recovery so she can get back to doing the things she loves. Your family is in my thoughts and prayers. Please let me know if there’s anything I can do. ❤

  6. Echoing Laurie D, y’all are amazing and so loved. Many prayers are being lifted in Texas for you and your precious family. God’s love and ours always, the Reese family

  7. Staffords…please let us know if there is anything we can do for you. Jakey can’t wait to give Delaney a big hug! We are thinking of you guys and praying for everything to go well. The Ryan Family.

  8. Your family is in my prayers! She is a fighter and she will fight her way through this just like my sister did!

  9. We lift your family and precious Delaney to our Father, I pray for miraculous healing and blessings on all if you

  10. Praying for your daughter. I’m a co- worker of Lorraine Richter and I have Chronic Mylegous leukemia. I m doing great thanks to God and gleevec which had just been approved for children with ALL. Please keep us updated. I’m believing God for her healing.
    God bless
    Diane Casey
    Cumming Ga

  11. Stacey, there are no words that will make the pain go away but please know that there are lots of prayers going up for not only Delainey but the entire family and doctors and nurses and staff. Love in Christ

  12. I’m happy you have an answer, and that it can lead to a positive outcome. I’m praying for you guys and will follow your updates!

  13. I am so sorry from one parent to another that you are going through this “adventure.” All of you are in my thoughts and tightly kept in my prayers!

  14. I am praying for Dalaney and you guys! I baby day your girls when you lived in rsm,ca. Delaney and I spent alot of time together while the older girls where in school and Stacey was sleeping after work. Thank you for keep us updated! I will be praying for Deleany! She’s a tough cookie she can kick this! Much love, Lauren

  15. Dear stacey& Tom,
    Our prayers, thoughts, & hearts are with your family. I’m so very sorry to hear this news. Please know we are here in frisco praying for you & and especially for Delaney! We love you, Moneta family

  16. I admire your family and all the love you share! I will be praying everyday for your sweet, amazingly beautiful girl!

  17. You are right. Delaney is the sweetest person in the universe. And she’s strong. The Freivogel family (J.D., Nolan, Mike and Mary) send all their love and prayers to you.

  18. Tom and Stacey,

    Our thoughts and prayers are with you, your family, and precious Delaney. May your faith in God and the love of family and friends carry you through this difficult time.

    Rosemarie and David Franklin

  19. Tom and Stacey,

    You, Delaney, and your family are in our thoughts and prayers.

    May your faith in God, and the love and support of family carry you through this difficult time.

    Rosemarie and David Franklin

  20. First, I wanted to let you know that I’m praying for you. I’ve been there with my own son, so I know what you are going through. The good news is that I write about our life after cancer. Also, I found you through a mutual friend, Joanne Brokaw.
    I look forward to reading more.
    Blessings,
    Pauline

  21. My thoughts and prayers are with you and your family! However, Our Healer has your beautiful daughter in His arms! I will continue to pray that you rely on Him for your strength and that Delaney remains in His Grip!

  22. Delaney IS the sweetest person in the entire universe. And she’s strong and spirited. All our love and prayers are with you all.

  23. Julie woke me up this morning to share your blog with me The whole Sathoff family is saying our prayers for Delaney and your entire family.

    Heb. 11:1

    Chad

  24. I do not personally know your family, but I have a 1st grader at Redstone and heard of your blog. I just wanted you to know that our family will keep your sweet little girl in our prayers and if there is ever anything that you ever need, we would love to help in any way we can. Thoughts and prayers to all of you!

  25. We followed you here from the mountainview table. Your entire family is in our constant prayers. We are here for your family if there is anything we can do to help any and all of you. -the Ueckers

  26. Hey guys and gals! Love the blog and we are continuing to pray for Delaney and your family. Keep up the posts and the sense of humor. That is what gets you through (oh and Jesus! )

  27. Hi Delaney, Im Cameron and Im 4. My mom found your site thru Kloves page. I just wanted to leave you a message and tell you that you are brave and I hope you get well soon. Me and my mom prayed for you before school and I want you to remember Christ gives us strength to do all things. ok 🙂 Ill check on you soon. Cam

  28. I came across your blog by accident .
    My name is Mary Delaney , my nice Stacey runs marathons And has a blog . I was looking for her but found you.
    I wish Delaney well and all the luck of her great Irish name . Keep up the fight. Regards Mary .

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